Tag Archives: Doctors

Who Do You Trust?

Yesterday massively sucked. Our house cleaner comes every other Tuesday, which basically means I can’t work every other Tuesday because I’m out all day doing mind-numbing errands with my mom and brother and by the time we get home I’m kind of fried. Yesterday was a house-cleaning day. Usually we’re up and out of the house pretty quickly, but for whatever reason, we took what seemed like over an hour to leave. On top of that, we had decided to go to Flat Bread Pizza for lunch, which for us is in Salem. Salem is a pretty long ride for us, and by the time we got to the restaurant I was famished. This is probably sounding like whining so far, and under normal circumstances, it probably would be.

Shortly after we got to the restaurant I started feeling sort of sick, so I just sat still and figured I’d be fine once I got some pizza in me. Flat Bread is my favorite. However, shortly after I got my first piece down, my head started spinning, I started feeling faint, and then I got sick in my plate. We left after that and went to a gas station next door where I tried to keep down some chips and some Gatorade. I couldn’t even keep down the chips, and I could keep down the Gatorade for a while until we got almost back to our house. Then I got sick again in a container of wet wipes.

I was so dizzy I could barely make it to the bathroom on the second floor of our house (which is across from my bedroom) to get cleaned up before I slept for several hours. I did finally get up around nine PM and was finally able to eat some crackers and drink some Gatorade. I was also, thankfully, able to get my epilepsy pills down, and then I slept pretty well last night.

Today I got up feeling almost back to normal. I ate a pancake and some cheese and crackers and a bit of fruit before going to get my blood drawn (to make sure I’m not, you know, dying or anything), which went swimmingly, and then I got coffee with my mom, and I just finished writing the fifteenth story in my mythology.

It kind of seems like I’ve had more weird health issues lately. I had a thought a little bit earlier today. Is a cry for help a kind of worship? I’ve learned to say, when I ask God for help that I trust him. He did get me through yesterday, and yesterday was one of the worst days I’ve had in a quite a long time. A little while after we had left the restaurant I was feeling really crappy, and I told my mom I thought I should go to the hospital. Willingly going to a hospital is like admitting the worst kind of defeat for me. I have to be almost convinced that if I don’t I’m going to die. I’m not exaggerating. My whole family (on my mom’s side, anyway) is like that. Luckily my dad talked me out of it, but I prayed to God before we got home, and I said, “I don’t want to die, but I trust you, and whatever happens, I’m ready. Just please help me.” Now reading it, it sounds absurd. I’m twenty-four, but yesterday I was ready to die if that was what it was coming to.

I suppose this needs a bit of explanation. The symptoms I was experiencing yesterday seemed to be the result of really low sodium levels. One of my epilepsy medicines does deplete my sodium, which stinks because I’m also kind of a health nut, and a lot of salty things aren’t particularly healthy. Sure enough, though, once I got some crackers and Gatorade down, I was a lot better. I should also say that I’m only a health nut in the sense that I try to eat fairly small portions and ration the amount of actual junk food I eat. I also prefer, in general, to snack on fruits and vegetables, but I certainly don’t go overboard to the point that I feel like I’m missing out on something.

Still, none of this really answers my question. Is a cry for help a kind of worship? After yesterday I’m inclined to think so. I think it depends on whether one trusts God, and if one remembers that he’s there in the good times as well as the not so good ones. I remember our priest talking about this a handful of times in church when I was younger, before I had ever even accepted Christ, really. He said it’s so easy to remember God and to call out to him when we need something, but he’s not just here to give us whatever we need or want. He seeks our worship when things are going well because he loves us and he wants us to love him back.

While I was waiting for my appointment today I was trying to work through this in my head, and ultimately I had to realize that I keep asking myself the same questions over and over, which all boiled down to one: Am I worth dying for? In the opinion of the God I worship, I am. Part of that question is: How am I, one out of millions, and nothing special, worth it, and why am I worth it? I’ve decided to stop asking, though. I told him that in the waiting room. I’m done asking, and instead I’m just going to say, “I love you, too.”

Because in my world guinea pigs can fly!

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Broken And Laughing About It

I’ve been reading a lot of posts about people figuring life/themselves out. Some of them I find a bit cliche, and some of them make me a bit jealous. I think I know myself pretty well, but I wish I knew more.

Unlike a lot of people my age, I know EXACTLY what I want to do when I grow up, and like a lot of people’s my future is precarious. Music isn’t exactly the easiest industry to go into, and my disability complicates things. I have epilepsy, which is controlled by meds on top of MD. I’m also very near sighted. Besides that, common sense often eludes me and I don’t know too much about how the world actually works.

Sometimes I just have to take a step away from myself and laugh. I’m so broken. I’m also special. When I was diagnosed with Muscular Dystrophy as a baby, the doctors told my parents that it was because they both had the same defective gene and they had better odds of getting struck by lightning than meeting each other.

After they did some tests it was determined that I had 3-5 years to live. My mom prayed incessantly for weeks until someone from the hospital called and said they messed up the test results and they had actually reported someone else’s results. They said that I would be pretty normal other than not being able to walk. They’ve been trying for years to figure out exactly what I have, but I’ve stumped the best doctors and the most advanced genetic testing. I actually find it funny. I think I’m God’s little anomaly.

I guess I shouldn’t worry too much about the future because my Father has taken darn good care of me so far. I’ve never felt bad about being a busted piece of work. When I was in elementary school the other kids thought I was awesome because I got to ride a trike around in the building. I can give people rides on the back of my wheelchair, which is a good deal faster than walking, and I get awesome seats at concerts. Most importantly, I can skip lines at Canobie Lake Park.

Because in my world guinea pigs can fly!