Tag Archives: Value

Something Worth Doing

This morning after I did my morning prayer, I played a stupid game on my phone for a little while. I went to bed very late last night, and really, I just didn’t want to get up. I could afford to just chill for a little, but then a thought came to my mind. I couldn’t help questioning why I was playing that game. It’s not actually all that fun, and I’m so good at it by now that it’s basically mindless. I couldn’t help asking myself if it was God’s will for me to be playing that game. My ultimate conclusion was that, while it was perfectly acceptable for me to be playing a dumb game, it probably wasn’t exactly what He wanted me to be doing.

Anyone who really wants to follow Christ ultimately has to ask what God wants them to be doing. When asking this question, though, most of us, myself included, are usually wondering what God’s ultimate plan for our lives is. We’re looking at the forest, without always seeing the trees. I reflected on this, and I asked myself, “What would God want me to be doing right now? I don’t have to be ready for work for another hour or so, and it’s not like I have to go far (I would be traveling from eating lunch in the kitchen back to my bedroom which would then be my office).” I came to the conclusion that, even if I didn’t have a concrete answer, I did know that God would want me to be doing something worth doing.

That begs the question: what makes something worth doing? What gives value to an action, practice, or effort? Ultimately, what gives anything value? I recently visited a group of third order Carmelites, and am considering officially joining their order. I’ve only visited them once, and I have a lot to learn, but my visit was amazing, and the people were probably the nicest I’ve ever met. I mention this because at the end of my visit, one of the women gave me a glass tube. Contained inside was water from the Jordan River and the Sea of Galilee, a tiny shell from the Sea of Galilee, and some dust from Mount Carmel; a mountain in Israel where the first Carmelites created their order. Measuring the worth of that tube in terms of money makes it worthless, but I thought it was an amazing gift.

Last night I was reading about the history of the Rosary, and I read that when it started becoming incredibly popular and well known, people would make incredibly fancy ones with precious stones on gold or silver chains. Mine is made of wooden beads on a plain cord. I bought that one partly because I’m the cheapest woman alive, but partly because a fancy Rosary would not be my style. It’s value is contained in what I use it for. I think about the things I consider to be my treasures. I have some religious items that I consider treasure, and some of them actually are nice, but I also consider my ability to use the English language a kind of treasure. Technology is also a kind of treasure because the ability to communicate, learn, and quite frankly, to be entertained, is valuable.

I also discovered something late last night. The value or worth of anything must be determined by something greater than itself. I often find myself marveling at the fact that the God of the universe wants anything to do with me. I am one in literally several billion people, but my Heavenly Father literally loves the hell out of me. Making sense of that love is confusing at best, and last night I found myself thinking, “Lord, you knew I’d never be able to walk. You knew I’d have epilepsy. You knew I’d be just as messy as anyone else. You knew I’d give up on you, and give up on myself for a while. You made me anyway, and you still chased me down. I just don’t get it. I’m not even important.” At that moment something stopped me. I think He stopped me because my next thought was, “Actually, you think I’m pretty important. If you say I’m important, then I’m important.” That thought made me happy.

I don’t know what God’s ultimate plan is for my life, but I do know some things. I call my godparents “Aunt” and “Uncle,” but we’re not actually related. A few months ago, I learned that their daughter, so my kind-of cousin, is going to have a baby this winter. Even before I knew this, though, I realized that I had a growing desire to be a godmother. I thought it was kind of weird desire, but I prayed about it a handful of times. This past weekend, it was decided that I would be my “cousin’s” child’s godmother. I have an amazing relationship with both of my godparents, and I hope to have the same kind of relationship with my godchild.

I often listen to Christian playlists on Spotify while I’m working. There’s a song that sometimes comes on that I kind of hate because it’s about how Christians spend too much time singing empty words and twiddling our thumbs while the outside world suffers. This song kills me because I am a sympathetic person, and I hate to see people suffer, but because of my physical impediments, I can’t go out and actively do much about it. I didn’t mention the song specifically, but I mentioned my trepidation about it to my godfather. He told me that my prayers are more effective and heard more readily because I can’t go out and precisely because I want to help. Despite the fact that I’ve witnessed the truth of it, I’ve had to have it hammered into me time and again that prayer is powerful.

I’ve learned that prayer takes faith, and prayer takes patience. It is absolutely true that God often works in ways we don’t expect, and He often takes His time. Sometimes I realize that God has answered me months or even years after I prayed for or about something. Conversely, sometimes He’ll answer my prayers within thirty seconds of me praying. It takes perseverance, and it takes practice. I’ve been praying the Rosary every night for, I think, nearly a year now, and I still get distracted. Sometimes I get a lot out of it, and sometimes I don’t. The point isn’t what I can get out of it, though. The point is what it can do.

I want to focus mainly on the Rosary because numerous significant miracles have been attributed to it. In 1214 the Rosary was presented to St. Dominic by the Blessed Mother to defeat the Albigensian heresy, which taught that the spirit was good, but the body was evil. Thus, they taught that suicide was a commendable practice. The Rosary, while essentially viewed through the eyes of Mary, so to speak, focuses deeply on the life and humanity of Christ, especially since the Luminous Mysteries–those that focuss on his miracles weren’t included until later.

The devotion of people faithfully praying the Rosary is attributed to nonviolent resistance to, and ultimate defeat of Communism in Brazil in the 1960’s. It was attributed to the healing of Father Patrick Peyton, an Irish immigrant to the U.S. who was diagnosed with Tuberculosis, which in the 1930’s, when he was alive, was incurable. In 1945, when the atom bomb was dropped on Hiroshima, eight Jesuit priests were together praying the Rosary less than a mile from ground zero. They miraculously survived, and suffered no radiation poisoning. Though not a miracle, I can certainly say that praying the Rosary has helped me to grow closer to Jesus and develop a relationship with Mary that I previously didn’t have.

The prayers of individuals can work miracles. That is absolutely true. I strongly believe, and I think I’m supported by history, though, that a bunch of people praying for the same thing can more readily move mountains. Even from a human perspective, it’s the difference between one kid pestering Mom or Dad for something, or two, or three, or maybe even six kids, if they have friends with them, all asking for the same thing. If you’re like me, you don’t always have people around to pray with you. That’s why getting to know the Blessed Mother, and maybe a handful of Saints is important. They may not be physically here, but they can and do pray with you and for you.

All of this is meant as encouragement to my readers, but also as a reminder to myself. If you don’t have the time, the money, or the physical ability to “go out” and volunteer or donate to charity, and that is a sincere desire of your heart, then pray. Do what you can, and don’t worry about what you can’t. Every day I can read, I can write, I can edit, and I can pray. When school starts back up for the kids, I’ll be teaching CCD. If you focus only on what you can’t do, you will ultimately do nothing, and that helps no one. Pray for the people doing the things you want to do because in this way, you are helping them, and vicariously helping the people they are helping.

I have focused mainly on praying for others, but I would like to emphasize that it’s just as important to pray for yourself. I would argue that it’s just as important to pray about nothing. We are meant to be holy and have a relationship with God. To have a relationship with anyone, you have to talk to them. I recently went to see Beck live, and I had a ton of fun. I had a ton of fun with Jesus because I prayed through the whole thing. I just said stuff like, “I’m having an awesome time. Thank you for this.” Pray when something is bothering you. Pray when you need something. Pray when you’re late to church and need a parking spot. He’s usually quick to help with that one. Pray when you find something weird or funny, and share the weirdness or the humor with Him.

Lastly, I just want to say that It’s perfectly okay to waste some time. I did a little while ago because, quite frankly, my brain was a bit fried. It’s important to make note of the things we do and the reasons why we do them. In the end, I felt that writing this was what God would have me do today, and I certainly feel that it was something worth doing.

“Me Before You”

I just read a review of the book Me Before You. I had never heard of it before, and the only reason I read the review was because a friend of mine posted it and the title of the article sounded interesting. Apparently there is a movie adaptation coming out in the near future, and based strictly on the plot presented in the article, this story sounds idiotic and evil. I don’t use the word “evil” lightly.

It’s supposed to be about a romance between a quadriplegic guy and his caretaker. He was paralyzed after being hit by a motorcycle and now hates his life. Apparently it is also over-emphasized  how people see and treat him differently. People are invariably awkward or uncomfortable around him. What’s even more problematic is that for one thing, he values himself so little that he is suicidal, and refuses to pursue what could be a loving, fulfilling relationship. It seems to me that he is largely portrayed as a burden or an object–at best, someone to be pitied and nothing else.

Normally I wouldn’t judge a story before I’ve seen the movie or read the book, but this really makes me angry for so many reasons. I was born with Muscular Dystrophy, and I developed epilepsy when I was eight, so my situation is different than that of Will’s (the character in the book), but the problems arising from this portrayal relate to disability in general.

I think it is true that the world sees people with disabilities differently. Sometimes people do pity us. Sometimes people are awkward around us. However, I noticed it a lot more when I was a kid. My peers were awkward. Sometimes I was shunned or excluded from things. However, I don’t think mature adults do this. Maybe it’s because I’m more comfortable with myself, but most of the time I don’t think people even see the wheelchair. They just see me. Often little kids look at me funny because they’re curious and they don’t understand, and I’m not offended. Their parents often try and get them away, so I make an effort to talk to them and act like a normal human being.

The fact of the matter is, disabilities are not something to be pitied. It’s just different. I can’t walk. So what? I am the first of my friends to graduate college. I’m the only one of my friends to have written and published music. I can write. They can’t. After reading the article this morning, I realized something else. If I was paralyzed, I’d have to be even more creative. This spring I took a few months of violin lessons. I don’t play violin the “normal” way because I can’t extend my arms enough. My dad made me a metal bar that fits into a hole in the side of my wheelchair and bends over my legs. I rest the violin upright on the bar, and play it kind of like a cello. My favorite thing is when people tell me I won’t be able to do X, Y, or Z, because I love to prove them wrong. I would love to hear about some of the creative things people with other disabilities have come up with.

I also love the question: “Do you mind if I ask…?” No one knows how to pose the question. They always trail off. I don’t know why, but I like telling people what Muscular Dystrophy is. Then I abruptly change the subject because my disability does not define me. This actually touches on a broader issue. I think, too often, people let small things define them. They sometimes put far too much emphasis on their own sexuality or the color of their skin or their gender or what have you. They do this because the world has done it to them for so long that it’s become second nature. It’s become their defining feature. I recently told my dad that when I was a little kid I hated the question “What do you want to be when you grow up?” I never had an answer. He said they asked because they were trying to put me in a box.

Our culture loves boxes, and they hate it when one box doesn’t comfortably fit in another. I am not primarily a disabled person. I am not primarily a woman. I am not primarily asexual. I am not primarily white. I am all these things, but I don’t really care about them. What matters to me is that I write well and that I love people, and that means all people, in a real, significant, tangible way. It matters to me that I’m an optimist in a largely pessimistic or even nihilistic culture.

The fact of the matter is, my disability makes certain things difficult. It makes some things impossible. That does occasionally bother me. Because of my MD I will never be able to live on my own. Because of my epilepsy I will most likely never be able to hold down a “regular” job. That’s fine by me. It’s all the more reason to write a seriously awesome novel, followed by many more. Most of my main characters have some kind of disability. I don’t focus on those. I focus on their strengths and their personalities. My story is about how a diverse group of people work together to dismantle a very problematic, illegal government program. The problems presented by Me Before You are all the more motivation to finish this thing and knock it out of the park.

Lastly, I want to focus on something that is of utmost significance. God made me who I am. God made a Katie with disabilities. To tell the truth, I think my faith is much stronger than it otherwise would be because of this. It makes me realize how much I need him, and it makes me realize how close he is to me. It makes me realize how much he loves me and how much he loves all of us. I know for a fact I’d be a very different person had I not had my personal complications. I would probably have different friends, and I might be interested in different things. I’d probably be more athletic. I can’t even imagine all that would be different, and if I could see that version of myself, there’s no guarantee that I would like it. I like who I am now, and if I were offered a do-over, I wouldn’t take it.

To anyone reading this who feels like disabled people should be pitied: Don’t! If you pity us, you obviously don’t know us.

To anyone reading this who feels bad for themselves because of their disability: Don’t! Seriously! It’s a giant waste of your time! Be creative! Be productive! Be happy! There is always something to be happy about! Always!

Because in my world guinea pigs can fly!